I Have This Terminal Disease,

It Moves So Slow It Is Killing Me!





Dementia Endured

One of 25 Best Alzheimer’s Blogs of 2012

alzheimers dementia blogs

Mike Donohue is a brave man. Courageous, direct, and bold, his blog energizes readers with a passion for action. Dementia Endured gives a hint in the title as to the nature of this talented writer: he will endure. And with a personality like Mike’s, it’s easy to believe that he shall overcome, as well!

His life experiences are opened to the reader, and his journey recovering from alcoholism to adjusting to Alzheimer’s holds its own fascination for visitors to his site. Mike’s strength and determination will remind readers that dementias are one area in which it’s best not to hold any punches.

THIS BLOG IS ABOUT MY JOURNEY FROM AA TO AD.

I have survived alcoholism from which
I recovered thirty six years ago then
Alzheimer's disease with which I was
diagnosed nearly five years ago. Both
have had profound consequence. They
are associated, one leading to the other.

I write about the experience in a book
click on the title to go to it or read more
about it in the column to the right

Tuesday, February 22, 2011

Positive Proof Prolonging Works!


I have posted 5 different articles having to do with exercise and other ways to prolong the development of Alzheimer’s. Read them by clicking on each to go to my archive to read them.

I post these with the notice that I will be out of pocket the next week and a half. I am not taking my computer. I intend to spend my entire time beach bumming on Waikiki

I’ll be back on track the later part of the first week of March, sniffing the air for the coming of spring.


Monday, February 21, 2011

One more coffin nail for burying any help for AD

Hat's Off!!!


Read New Ideas in Dementia Care on The Tangled Neuron by clicking on the title to go to the Tangled Neuron or by clicking on Archive where I have posted it. It is refreshing news and yet another example of both "Our Need" and the "How To" dealing with this problem becoming exclusively OURS!   
How very important; how very significant; how badly needed to hear more of these new ideas. A new way of thinking about Alzheimer’s Disease (AD) is sorely needed. Not only do we need new direction, as current circumstances will dictate, we will be required to find new direction in the way we care for those of us affected by AD.
 
The sign posts are everywhere. Cutbacks here, there, everywhere, deficit intolerance, tax cutting fervor, 2 years post democrat landslide republicans walk away with the election.
 
If you pause to look you can see anecdotal evidence behind the signposts any way you turn your view.
 
Reading the newspaper this morning there is report of the building gridlock in Congress over the House adopted budget cuts, stalemate in WI, a liberal Governor in MN proposing a budget cutting nursing home benefits for K-12.
 
Our near term future will be in continuous oscillations between right and left with the only result the balance between what we know as more gridlock, more political and economic stagnation.
 
Realistically Government will not; won’t; can’t; should not be relied on to fill any needs of AD. Our only hope is to do it alone, ourselves, in groups, in a grass roots way, finding innovative ways that produce results beyond palliative ones, results that not only help, but enhance both quality of life and economy in care for all of us affected by AD.
 
None of this now exists; economic worth is swirling down the drain to the profit taking practices fostered out of Washington, Wall Street, Big Corps, Big Pharma, Big Health Care Service, Big Health Care Insurance Industry, the list is endless. It is classed under Hi-Profit and Capital Growth Industry in the private sector subsidized by concerted lobbying outright subsidy and regulation out of Congress and the Bureaucracy.
 
It will be up to us on the local level, designing programs with efficacy and economy, utilizing the many tools we now have. What tools? To name but a few:
 
1.         Religious, Altruistic, Issue Oriented Groups sponsored by and formed to help the people and not to raise money for Big Pharma and Big Health.
 
2.         Neighborhood Co-ops and mutual aid groups to organize common services and care for all seniors with special emphasis on AD needs, seeking economy and competence available to members participating with a common building, development or neighborhood locale. This would be administered by participants and social service agencies.
 
3.         Build the work of social service and like kind agencies with the counsel and cooperation of those AD affected to forming the kind of groups helpful in prolonging persons in early stage, caring for persons able to live at home, operating aiding and staffing small day care, assisted living and nursing home care in small, multiple, neighborhood settings, capable of serving the needs of the area in which it exists and accountable to the people it serves saving the high premiums incurred by uniform homogenized governmental regulation.
 
4.         Form groups from Schools, Primary, Secondary, extended schooling, such as Trade School, Community College, College and Universities to serve. Start with curriculum emphasizing the responsibility to care, morally, spiritually, most of all in order to provide help in a learning environment for students. Follow through with devising, organizing and fielding programs to visit, to help, to attend and to staff the service of helping out.
 
Add to the curriculum, particularly in higher education levels, programs for serving the actual needs of people affected by AD, such as, Psychology, Social Science, Physical and Occupational Therapy, Education and, other relevant departments with the knowledge, background and management capability to form these programs ranging everywhere from introduction and follow up along with support groups to introduce, teach and maintain the coping skills of living with the disease.
 
Other groups would be Social, Intellectual and Creative groups stimulating via communication and program the many modalities now existing and those to be added and experimented with to both enhance and maintain quality of life for those affected.
 
5.         A huge untapped resource is the many shrinking exurban, suburban and inter-city urban areas dedicated to the living and growing needs of families with children developed post WWII, and not is tragic decline. All that is left in them are the seniors who haven’t left home and can’t navigate the freeways and highways easily to fill their needs.
 
There are no services for them nor is their as yet a superstructure forming out of the vacant infrastructure to service this needs. It is too costly to build, as much to renovate. We need programs of renewal, a bold Urban Renewal Program out of Washington would be wonderful but is not to happen.
 
What we can do is use existing governmental and social organizations at lower level to form, manage and fund improvement making it economical to do. The result is neighborhoods in place, retail space available, both waiting for the other to come and make a marriage.
 
One possible funding source is the one we developed in the days of locally fostered public works using the local governments to write lower costing tax free bonds, providing programs for tax increment financing and all of the schemes the became unpopular after Morning In America dawned.
 
I will stop at five of an otherwise endless list of proposals that will provide Effectiveness and Economy in Care and benefit all of us as be left out in the street when the federal bank breaks!
 
Little is now being done, so much more needed, and after sufficient stagnation it will be required of us.
 
So hat’s off to what the folks are doing in Rochester, NY where the meeting and work reported in The Tangled Neuron was done.

Sunday, February 20, 2011

How the Boomers Will Sow More Seeds in the Tsunami

The so called Silver Tsunami is ominous enough with the numbers bulge it starts bringing over the line that finds greater risk of being stricken with Alzheimer’s Disease (AD). Add to that mix the dubious ability of most Boomers coming to retirement to fund the Cost of Care, whether or not the care is at home, or some form of day care, assisted living or nursing home care.

If you have enough money, don’t worry, pay for it and thank God you have enough. If you have more than the minimum ceiling set by government, be warned! You and your spouse are required to pay until your retirement funds run down to the limit that is a little more than 100,000 between the two of you.

Once those funds of yours are paid down out, for Cost of Care, you can than qualify for the government to step in and pay for the care. At that time your spouse is left with the prize of what’s left between the two of you to continue to pay the monthly budget and live out their term of years. Looking at the monthly budget alone, multiplied by 12, how many years will you as surviving spouse live before you are out in the street? Then you are on whatever local Welfare might be available, if any, most of which is in the not any classification.

Once paid out you are in the same class as those without enough. The spouse with out enough has Cost of Care funded, otherwise you all are in the losing race for survival.

So, What to do? This scares the bejeebers out of me.

The math is not that hard. Figure the increase in those becoming 65 and of course, not staying there but getting older each year, in which the risk of getting it increase not only of the total now in the greater risk group, but increase in the percentage of risk likelihood of getting it.

Write those numbers down; place them to your side. Now anticipate the life expectancy of all in the field of greater risk. Add to that number a suitable percentage rate to reflect the increase of living potential that extends the lifetime expectancy figure that will give you added years to live by each added member. Write that number down put it at your side.

Then the hard part of the math, you might want to use a calculator and someone trained in statistics analysis.

First calculate the numbers incurring Cost of Care for the next, (fix a period of years, you life time, your children or grand children’s lifetimes, you and they are the ones with the obligation drawn on to pay these costs. Why? It is us who are the ultimate resource who fund government, maintain investments, make the contributions and otherwise fund the sources making the payments, if any, for the cost of care).

Take this Cost of Care total for the period you have designated, divide it by the number of years in that period to determine the total paid out in each year for cost of care. Multiply the subtotal for annual Cost of Care for the number of people incurring the Cost of Care for that year. Write down each annual Cost of Care total incurred for each year within the designated period, then total all the years for the designated period and write it on a slip of paper and put that on the side pile

For each year during the chosen period calculate the number of persons in that year who will incur Cost of Care. Next calculate the total will that will draw immediately from government aid for the cost of care. Deduct the cost of care for each such person from the total cost of care for the year.

Having arrived at that, determine a percentage of number receiving age, increased by the number to which this pool increases, and its attrition by reason of death. Having that number deduct it then from Cost of Care for that year. Then take the remaining Cost of care, the number of people paying it out of their own pocket and from that calculate in how much time the ones paying out of their savings will have paid out their savings than move them into the column for recipients of government aid.

Getting to this is completely beyond my addled brain’s capacity for making the determination and probably was that before I had AD.

This done you will have two figures. The first and most important, how long the economy, exclusive of the number and total investment owned by them of those who can survive the Tsunami of Cost . They survive this and will survive the economy.

Do the calculation. It is appalling! Taking current cost, current investment ownership, increased number of people incurring the cost, calculation totals, after taking account for percentages for present value and actual increase, and all of the other factors that would go into a statisticians analysis, this will not paint a pretty picture.

We the middle class and the poor will be broken along with the economy and the society that sustains us.

This needs to be a call to reason!


Read the article entitled: Retiring Boomers Find 401(k) Plans Fall Short posted in my Archive by clicking on it. This article is well written, statistically valid, determining how much less the Boomers are bringing into their retirement to fund it, not even dealing with the Cost of Care should they fall into the trap of AD. There the cost increases the ability to earn extra income lessens.

Saturday, February 19, 2011

NEED MORE BE SAID? NOT REALLY!

 The foregoing sentences say so much which is disregarded by the professional pontificating what they know better about Alzheimer’s Disease (AD).

A doctor, purportedly a geriatric specialist addressing a roomful of clerics, the clerics there to be encouraged to include pastoral care part of their delivery of needed service for their respective flocks, said: “We try to treat the Caregiver. It’s possible to help them. The person who has AD is different. There is not anything we can do for them other than try to keep them safe!”

This paraphrases the view of so much of the medical profession who don’t have a clue, worse the don’t know they don‘t have a clue, and arrogantly dispel any other who might. When this is heard from an expert who should know it’s enough to make you sit down and cry.

Then oh yes, the National Institute of Health (NIH) ruled dispositively: (A lawyer’s term for absolutely) Independent Panel Finds Insufficient Evidence to S...  http://depo-dump.blogspot.com/2011/02/independent-panel-finds-insufficient.html Read it by clicking on the title and/or taking the above web address and putting into the web address window on the top. Bob DeMarco commented later on 4-28-10 NIH Panel Finds Insufficient Evidence to Support P... I but have the cite to my archive, not to Alzheimer’s Reading Room failing in my usual practice to hypertext both.

The NIH News Release read in part:

We wish we could tell people that taking a pill or doing a puzzle every day would prevent this terrible disease, but current evidence doesn't support this."
The panel's assessment of the available evidence revealed that progress to understand how the onset of these conditions might be delayed or prevented is limited by inconsistent definitions of what constitutes Alzheimer's disease and cognitive decline.
The panel determined that there is currently no evidence of even moderate scientific quality supporting the association of any modifiable factor—dietary supplement intake, use of prescription or non-prescription drugs, diet, exercise, and social engagement—with reduced risk of Alzheimer's disease. The evidence surrounding risk reduction for cognitive decline is similarly limited. Low-grade evidence shows weak associations between many lifestyle choices and reduced risk of Alzheimer's disease and cognitive decline.

Too often I have written particularly recently this was a self serving conclusion on behalf of NIH to retain the agenda. Like Harry Johns at AlzAssn they make it their own agenda coupled with justification for the blinders the wear.

On Alzheimer’s Reading Room is but one more affirmation that the proof of a negative by another negative by the NIH is BUNK! Click on the title to read it or go to Archive where it is also posted

Friday, February 18, 2011

LIVING NOW - FOR NO MORE THAN A MOMENT

This is another add on, not yet finished, to be finished, added none the less as easy reference for an COLLABORATIVE essay now in the writing

 LIVING NOW - FOR NO MORE THAN A MOMENT

INTRODUCTION

During out lives we occupy no more one moment at a time. This moment is the moment we are presently in. This moment we occupy is the junction between what was and what will be. What will be is what happens following the moment. Sometimes it is predictable other times it’s a surprise.

Can we direct what happens next? Can we make what happens next?

Exercising cause to create effect is a tool we have. With that we can try to influence future moments. Too often it doesn’t happen as we direct. By acting within the present moment we can try to cause an effect to take place in a next moment.  Invariably the unanticipated intrudes on the intended moment producing a divergence or an altogether different result.

We live moment to moment. Neither the next nor the previous moment is with us when we act in the moment we occupy. Neither the future moment nor the previous moment is able to absolutely effect the present moment. We seem to be limited to acting within the singularity of the present moment.

In this way our choices are confined within our now. The past can influence this present moment, the future may be influenced from the present moment. Neither past nor future can control that present in which we exercise choice.

Is this splitting hairs, counting angels dancing on the head of a pin? Or, is their significance in any of this?

III

I believe it is significant. What it tells us in metaphor is this: “Our life is but a movie with us its spectators who have an occasional opportunity to interface.”

The Buddhists speak of living in the Now, the events of life are illusory; we go from one event to the next choreographed by the Karma we bring with us into life. This in turn can be honed by the transactions of living. 

In Alcoholics Anonymous it is said “One day at a time. Yesterday is over. Tomorrow is not yet here. All you have to deal with is Today!” Alcoholics say they have to live this way; doing so is the only way it works.

Whether we conclude this by reason, by belief, by experience, it seems we are very much controlled by the events as they transpire in our lives. We do not make the events, they make us. Our measure of worth in living, its value, is found in how we choose to react and respond to the events as they occur. It is this that truly refines who we become from one moment to the next. In the end we are the sum total of what we have done with what we are handed in this life.

II

            The misapprehension that we are in charge too often is the most disruptive force in getting on with what is to happen next. We tend to get in the way! This disrupts the orderly passing of events in our life and produces aberration.  It does us no good. That life force that pushes us one way then has to work harder to get us back on that one way.

            This is why “one day at a time”, “live in the now”, are working principles for us. Lean back, let it happen, live and let live, how many of these clichés are out there, Funny thing about them they do actually work. “Still, I am afraid to go with the flow; I gotta direct it so it goes right” we say. It is so hard to give up that control we think we have but do not have.

            Retrospective view is the one insight given us from which we can learn something. When I look back I see this:

·        Everything that happened follows a direct course linked to the events which led to it. One after another they all connect. In this way these previous events do influence the subsequent events.
·        It is as if they form a pattern. A pattern I have had little or no hand in formulating.
·        So many of the events are such that there is no way I would have chosen them to happen. They are no more directed by me than was my birth to my parents in the time frame it occurred with the gender choice for me as I entered this life.
·        The degree to which I stepped back out of the way eased the process of the happening of these events. The extent in which I could turn it over, let it be, go with the flow, the easier time the process has reaching its result.
·        As each of these events transpired, one following necessarily on the other, the pattern of them produced in my view a favorable result. Not what I might have chosen. But, not something I would choose to turn aside. I like the result in spite of what I would have had it be.

From the foregoing I have come to believe my life has occurred according to plan, not my plan, but a plan, that flowed along its own terms. I do not know who set the plan, where it came from; whether or not set in some dimension beyond this one in which I find myself, none of it is of material consequence to me.

What is significant about it is this: It is the way it seems to happen. Anything I have done to defeat it backs up beating me. It occurs in spite of me. The best I can do seems to be to make it harder and too often I do just that.  Having 72 years of living this experience I am convinced this is how it works!

III

            Looking at this, evaluating it, understanding it allows formulating some practical applications. It is the practical applications that are the purpose of my writing on this subject.

By History

            It simply happens this way. I conclude after many unsuccessful attempt at different results that to fight it is to make its happening difficult never to prevent it. If I accept it things do change for the better.

A few anecdotal examples:

(To be added)

FREEDOM OF THE NEW (Intro)

This short post introduces the following series I posted some time ago, click on any of them to read:


FREEDOM OF THE NEW (Intro)

I read somewhere once that we live within the confines of our activities. Our reality is what we do, who we are, how we relate to those around us. We develop styles of relating, routines of doing, etc. This seems to keep us going and accountable to ourselves while we are getting there.

In this “what we are” “how we have are defined” by ourselves and those around us, and “how we do things” becomes a lot of who we are. A personal tradition rules in large part without necessity of much thought or decision making.

Think about it:

You encounter a person or event for which you have already formulated your definition for what it is. An example: You are on your way to this party at your Aunt’s. They are always boring beyond belief. You can’t wait to leave. There is a bias involved in your expectation of the event that is difficult to overcome and accept should it turn out to be enjoyable and interesting.

We experience moments of freedom when we find ourselves in a completely new and different event, one for which we have neither familiarity nor preexisting attitude with which to encounter it. We have never been here before. We do not have a formula to use with it nor do we have the experience with which to employ a pre-decided bias.

I for one in such an event feel exhilaration and freedom. Boredom is broke. Everything is new and mine to decide how I relate to it. Sometimes these are difficult. A kid in a new school can find it a kick or a curse. Leaving home and taking on the world as a young adult can be a joy. It has so much to do with what you make of it.

This has been my reaction to my Alzheimer’s diagnosis. At first I went through the Kubler-Ross formulated steps of grief. When I was through with it I came to a personal decision: “So, what are you going to do about it?” My answer: “Make the best of it!”

What followed was the most freeing event of my life. I no longer have to be anyone or anything that was expected of me. I am not what is expected of me by me or by anyone else. This led me to the decision to take what I had been diagnosed as having and use it to help others. My purpose in this is to make this terrible disease that is mine the course of which is dreadful “Count for Something!”

That is what I am about with my diagnosis more than two years ago. My acceptance of it has given me more peace and serenity than I ever though possible.


Mike Donohue

I Think Therefore I Am!

CAVEAT: This is heavy worse long. It goes with other postings i've made on the workings of the mind. It is unfinished, but as part of the others I am getting it blogged at this time to have it available to blend with the others I am grouping together


The are as follows: click on each to go to posting.

  1. It's All in the Learning, that is Plus and Minus
  2. Working To the Endpoint
  3. LIFE: THIS FINITE WONDERFUL PLACE IN TIME
  4. DANCE WITH THE ANGELS
  5. We Join the Grand Celestial March
  6. Is There More That We Can See?




I Think Therefore I Am!

So said Descartes. Who is he? Wikipedia tells us this:

René Descartes (French pronunciation: [ʁəne dekaʁt]; 31 March 1596 – 11 February 1650) (Latinized form: Renatus Cartesius; adjectival form: "Cartesian")[2] was a French philosophermathematicianphysicist, and writer who spent most of his adult life in the Dutch Republic. He has been dubbed the "Father of Modern Philosophy", and much subsequent Western philosophy is a response to his writings, which are studied closely to this day. In particular, his Meditations on First Philosophy continues to be a standard text at most university philosophy departments.

The arrogance of the West calls Descartes the Father of Philosophy. “I” is his concept, encapsulated into an aphorism serving as the title of this Blog Post. It is this concept that comprises so much to which we in the West direct our study of philosophy.

As we learn more of the science of things, see so many new discoveries having consequence in understanding the Cosmology of existence in this, to observe that “I Think” and conclude from “I Am” looks a little like oversimplification.

Questions we need to ask of us and others are these:

Is that it? Is that all of it there is? Is it the mind I sense as mine doing the thinking or is it the brain in its bio-chemical functioning doing the job? Are they one and the same or different properties of being as part pf me? My brain dies when I do. Does my mind do likewise? If it continues where does it go? If it doesn’t why doesn’t it?

Is the mind more than this bio-chemical marvel in operation in our head? If so, if it is more than an anomaly of the function of a bio-chemical process, how did it become separate? How did it come to be? Did it come before our body materialized in our mother’s womb and/or the brain was formed in this process of gestation? Or, is the body but a portal, a conduit, a vessel for expression of the mind in this unique temporal dimension?

The scientists tell us about this complex Universe we occupy. That Universe is observed in part by our power of observation and conclusion. They describe how it is made up and how it functions in the dimensions of space and time. The scientists tell us of the constitution of matter, that matter of which we are aware, more matter of which we are unaware.

We see a striking similarity between the universe and the essential breakdown of matter into its component parts. Broken down these parts appear to consist of objects orbiting around an additional object in the middle. These orbiting groups of objects in turn orbit one around the other group in growing dimension, spinning out from the center of the first orbiting mass.

Does that refer to matter, particle, neutrons, quarks, waves, or does that relate to planets, stars, galaxies and universe, oh, and which Universe? Scientists now talk about more than one, the multi-universe, alternative universes, and parallel worlds.

The scientists then say the basic component of matter, particles or other smaller component parts, are really not those at all. They are in fact waves. They are movement that we observe at the given moment of time in which they move. As such we see them as something in place which in fact they are not. They are pulses of energy on the move. They’re composed of movement within a confined integrity within the passage of time.

The component parts aggregate together, namely, they consist of what we observe as a set mass characterized as a singular object. Within the power of our observation we recognize that object as a material object. It is the object as we observe it to be that makes up the spatial structure we identify as material. The object observed has far more properties than we observe. It is not material, only our reference point, that part observed by us is material. We see its observable component parts as one object existing outside of us. However, it exists only in our observation, nowhere else.

The essential part of property of an object we observe to be material is not material. The observation we make of it is how the brain, the bio-chemical part of us is programmed to account for the existence of it within that brain’s capacity to observe it in its existence.

The bottom line of what the scientists say is matter is not that (it is not matter).It is movement. What we see is illusion created by the pre-conditioning in our brain. They haven’t determined whether this pre-condition, this programming is the creation of the function of the brain, the influence of the mind or instilled by an outside source, the object itself or something beyond that, or some combination.

In the process of occupying a common environment where we are linked in communication one to the other in the passage of time, our brains are programmed to recognize non material objects as material objects in the same way. Therefore it seems in the sameness to each of us of all things seen, we believe it to be the same. To the extent that it is made up and confined within the parameters of its moment of movement it is the same seen by us as the same. Through the multiple ways we communicate with each other our brains learn to identify things observed in the same way.

The Cosmologists take a further step with the Scientists and by testing determine:
This object, this movement, whatever it is has in its existence is no more than our observation of it. This adds to the illusion. By testing they have determined the existence in space limited in time limited as movement in a moment of it as it is observed by a consciousness. More confounding: its place in space is not necessarily limited in its placement there; it can change in the process of observation of it.

The Schrödinger Cat Experiment demonstrates this.

See my Blog : Is There More That We Can See? In this blog post I discuss more to see that we don’t see.

Schrödinger’s Cat gives the best illustration of this. I discuss it in the foregoing blog post.

The Cat is in a box, which at first the cat is there, then it is not there, then it is there again.

It is surmised there are channels available to pass thru time and place to other times in places, forward, backward and laterally. For lack of a better term describing them they are called “Wormholes” the forward and backward feature of them could amount to time travel, lateral movement could be travel from one universe to another.

The same musing suggests there has to be more than one universe in existence to accommodate choice and change as naturally exercised by us. The explanations range around the topics of the exercise of free will, the results of choice, the relative nature of existence that is within our exercise of consciousness to see, like seeing or not seeing Schrödinger’s Cat. This is then extended from the act of consciousness coupled with the act of choice of one alternative in the exercise of free will over another, or by a predetermined cause, the choice of Yea in either and all events demands the generation into reality of its partner Nay.

The yea and nay being mutually exclusive it is then reasoned that the other happens, exists, in another universe. The effects of this kind of generation of course wears out the non-concept we have of infinity.

A writer named Robert Lanza [i] takes the cosmology of space, the pathology of cognition and surmises within that context along with many other factors, like Schrödinger’s Cat, that the world is not as we believe it to be. He calls this his theory of Biocentrism.

Note the footnote following his name. In the reference I have included a cursory explanation of Biocentrism. The theory is essentially as follows: those things observed by us to be outside of us are not controlled by the confines of space and time as we believe them to be. Starting with the fact they are movement captured by us as stationary material in the instant of time we make our observation of them, they are as we observe and no more than the observation we make of them.

Although occupying the cosmology of what constitutes our existence and perhaps in some way the universe from which we are observing that existence, that which we observe is not necessarily bound by either time or space.

From there Lanza asserts the control we can exercise over what we observe by observing them and thereby choosing the characteristics in which we make our observation of them, thereby seeming to create them.

Deepak Chopra a kind of Renaissance Transcendentalist and New Wave Thinker speaks of our power over the objects outside of us much in the same way, however for other reasons. He takes what he believes to be the extrinsic properties of them and us and speaks of what can evoke from, between and within the communion of both.

In many ways this is not unlike the existential existence derived by the encounter between Martin Buber’s I and Thou. Much of the same thought permeates writing on Buddhism and premises in foundation from beliefs of other Eastern Systems of Philosophy and Thought.

The bottom line is this: boiled out so much of this is the same, not simple, but uniform in its basics.

The technically adept West arrogantly believes it has it all right. Science, Religion, Philosophy, it is all time limited material, serially evolved and or projected! All of the rules discovered about it with all of those yet to be discovered, absolutely determine it and by determining formulate it absolutely.

But then there is the East, the reverse or mirror image of the West in so much of this. The concepts of Buddhism, Taoism, Confucianism, Hinduism, etc see things quite differently. I can only speak with a small amount of authority having studied Buddhism.

I was educated and trained in the Western tradition. I found Buddhism as an important subject of study after a lifetime of an existential search of “What’s it all About?” I could not find a complete answer in the Western Traditions.

I put what I learned into book form the title of which is From AA to AD, A Wistful Travelogue available at Amazon. Click on the title to go there.

Alzheimer’s Disease (AD) prompted my introduction to what I have come to believe are the facts of what it is all about.

I arrived at knowledge of what my life has been all about by putting it together into memoir then stepping back and looking at it. In the memoir I wrote:

We Have a Plan
We seem to follow a plan as we live. Whose plan, what plan, where did we get it?  I honestly do not know other than I know the plan is not mine. I know this because there are too many things in my life I would not have done, would not have planned to do, and am totally surprised by having done them. 

I arrive at this conclusion in this way: I look at the results of this plan as I have lived it. I am pleased. I would not change the result in any way. At best, at each juncture of the plan, each event I encountered following it, I had the choice of accepting the direction in which I was urged or refusing to take that course. The times I have followed the plan I obtained the best result.

What I learned applied in the context of this topic is that my life included more than myself in the living of it. This is seen in the decisions I made, why I made them, and the purpose they showed in where these decisions took me. The end result was to my benefit, and in many ways was in spite of me were the choice to have been mine.

This discovery of mine is significant in this respect. A purposeful bias accompanies me in the exercise of my conscious interaction in my life. It seems the bias is the exercise of a power the source of which is not in me. This power seems active in all of us, guiding, directing and it challenges us.

The significance of this as it regards the topic of this essay has to do with recognizing a bias going on in the process of our conscious interacting in our world which is not singularly ours. It is as if there is a power active within us, patterning so much of what we are doing.

It is the presence of this power that can be seen in the way we think, the way we develop our powers of cognition and the how we interface our world using it.

We have the power to learn, the power to share, the power to make more of what we have in this process we use in confronting the world, interacting with it and with each other.

It seems like we are all programmed in the same way from birth to death in the use of our capacity for sentience and cognition. We use it in a practical way, in different ways through stages of our lives, and use it to survive within this strange framework of time and space in which we find ourselves.

I have discussed this process and proclivity in a number of blog posts previously. One of my first posts was ESSAY: LIMITS BY DEFINITION JANUARY 14, 2009. Click on it to read it.

In this essay I speak of reality and interacting in what we sense it to be. Centering on how we interact using the marvelous machine we know as our brain we learn with it, store what we learn, make short cuts to remember what we learned and extrapolate the data assembled into a more meaningful whole from which we go on learning.

It is fascinating looking at the pragmatic way we use this power that is ours, use it for our purposes and expedite the process doing so.


ONLY THE MOMENT IS OURS TO DO is an essay posted on April 25, 2009 discusses the instantaneousness of time in which we act and the overall plan choreographing the act with all of the other acts linked to it.

The conclusion reached in that essay was this:

Retrospective view is the one insight given us from which we can learn something. When I look back I see this:

• Everything that happened follows a direct course linked to the events which led to it. One after another they all connect. In this way these previous events do influence the subsequent events.

• It is as if they form a pattern. A pattern I have had little or no hand in formulating.

• So many of the events are such that there is no way I would have chosen them to happen. They are no more directed by me than was my birth to my parents in the time frame it occurred with the gender choice for me as I entered this life.

• The degree to which I stepped back out of the way eased the process of the happening of these events. The extent in which I could turn it over, let it be, go with the flow, the easier time the process has reaching its result.

• As each of these events transpired, one following necessarily on the other, the pattern of them produced in my view a favorable result. Not a pattern I might have chosen. But, not something I would now choose to turn aside. I like the result in spite of what I would have had it be.

From the foregoing I have come to believe my life has occurred according to plan, not my plan, but a plan, that flowed along on its own terms. I do not know who set the plan, where it came from; whether or not set in some dimension beyond this one in which I find myself, none of it is of material consequence to me.

What is significant about it is this: It is in this way it seems to happen. Anything I have done to defeat it backs up and beats me. It occurs in spite of me. When I take control of my moments and try to direct my response it makes it harder for the natural consequence of my moments to occur. Having 74 years of living this experience I am convinced this is how it works!


[i]

Robert Lanza:

Theory

Lanza argues that the primacy of consciousness features in the work of Descartes, Kant, Leibniz, Berkeley, Schopenhauer, and Bergson.[7] He sees this as supporting the central claim that what we call space and time are forms of animal sense perception, rather than external physical objects.[8] Lanza argues that biocentrism offers insight into several major puzzles of science, including Heisenberg’s uncertainty principle, the double-slit experiment, and the fine tuning of the forces, constants, and laws that shape the universe as we perceive it.[2]According to a Discover magazine article adapted from Lanza's book, “biocentrism offers a more promising way to bring together all of physics, as scientists have been trying to do sinceEinstein’s unsuccessful unified field theories of eight decades ago.”[9]
Lanza's theory of biocentrism has seven principles:[10]
1.     What we perceive as reality is a process that involves our consciousness. An "external" reality, if it existed, would by definition have to exist in space. But this is meaningless, because space and time are not absolute realities but rather tools of the human and animal mind.
2.     Our external and internal perceptions are inextricably intertwined. They are different sides of the same coin and cannot be divorced from one another.
3.     The behavior of subatomic particles, indeed all particles and objects, is inextricably linked to the presence of an observer. Without the presence of a conscious observer, they at best exist in an undetermined state of probability waves.
4.     Without consciousness, "matter" dwells in an undetermined state of probability. Any universe that could have preceded consciousness only existed in a probability state.
5.     The structure of the universe is explainable only through biocentrism. The universe is fine-tuned for life, which makes perfect sense as life creates the universe, not the other way around. The "universe" is simply the complete spatio-temporal logic of the self.
6.     Time does not have a real existence outside of animal-sense perception. It is the process by which we perceive changes in the universe.
7.     Space, like time, is not an object or a thing. Space is another form of our animal understanding and does not have an independent reality. We carry space and time around with us like turtles with shells. Thus, there is no absolute self-existing matrix in which physical events occur independent of life.
 P

Another Picture About Which You Might Ask “Huh? This Doesn’t Add Up!

Reported today: Analysis: Neuroscience under threat as Big Pharma backs off posted in my Archive. Click on the title to read it

I wonder how self serving this position by Big Pharma is on the heals of Harry Johns coming out of the closet for Alz Assn declaring the statistics showing the epidemic proportions of Alzheimer's Disease (AD) tell us one thing, more money for research.

While I don't disagree with the concern, nor the need to get for more research, does this justify asking for patent extension so we can continue to pay so much more for the medication now shown to be effective?

Does this justify the neglect of the needs of those of us with the disease needing help to maintain our functionality in Early Stage and our solvency when required to go to the "Home"

Where are the programs for the Active AD Afflicted to keep them active and out of the "Home"?

Where are the programs for finding Economy in Care?

Why must the Fat Cat's on Wall Street and Big Business have ownership of 67% of care facilities and the corresponding profit from high fees and inadequate service? Why do we continue legislation and regulation supporting the"Donut Hole" conceived Insurance companies? Why do we act to support Big Pharma, now competing with Oil for being the most profit productive? Why do we protect Health Care Industry which has put profiteering ahead of care?

The Conservatives keep finding traction to spin their irrational opposition to Health Care reform, getting a majority again in the house but two years after the squalor they produced with the Great Recession.

I look at this and ask: What's the matter with this picture? It makes Kafka seem reasonable, logical and orderly!


Thursday, February 17, 2011

IT’S ALL IN SEMANTICS USED IN EXPLAINING…

I agree wholeheartedly with the view of Dr Perlmutter about the unpreparedness of the US as it concerns the happening of Alzheimer’s Disease (AD) in epidemic proportions.

See the article Alzheimer's Prevention: Reducing Your Risk by clicking on it

I agree with his statement of our need: “to expand the public awareness that modifiable lifestyle factors have a profound role to play,” and,

I agree with his conclusion: “For now, we are being told to pretty much live our lives come what may and hope for a pharmaceutical magic bullet. But the science tells us otherwise, and gives us hope that we can indeed take action today to reduce our risk for Alzheimer's disease”
I regret he fails to see and to state that science and plain outright commonplace experience tell us life style changes have a profound role in prolonging Early Stage with AD Afflicted. We need early diagnosis (Dx), concerted individual and community effort to provide programs and therapies that stimulate the Intellectual, Social and Creative interests of the persons in their Early Stage, save them form isolation, passive social abandonment and the depression produced slippery slide into the institution.

This works, try it you will like it. Liking it is the key. One of the more debilitating factors of AD post Dx is attitude; the continued depression about it after being diagnosed with it. There is little reason for any positive view for what follows after you have it. I know because I have it!

There is an alternative that can be made into a positive outlook, increase your quality of life post AD Dx, and prolong you with the best of Post AD Life. This is the single most  important factor in the “How To” list of coping with AD. One of the collateral benefits in coping is prolonging the
Early Stage.

Along with my anecdotal view there are volumes of data evidencing the experience of so many coping, taking positive steps of coping, exercising the so-called “Best Practices:” viz. Eat Right, Exercise Daily Become Involved in Stimulating Intellectual, Social and Creative Activity, Take your Medication.

Dr Perlmutter is correct in his conclusions short of recognizing the positive affect “modifiable lifestyle factors have a profound role to play” not only in reducing the risk of getting but the risk of declining rapidly once diagnosed, if early enough.

When assessing the epidemic proportion and escalating cost dealing with the disease AD which he does so admirably, and our woeful unpreparedness we need to include changing our entire way of dealing with it.

In the near term a drug will not do away with it. Let’s hope we eventually do find that magic pill.

In the meantime we need to get serious about treating this disease in its earliest stages and doing all we can to keep people out of institutions. Once needing to go in, as we all will, myself included, we must find Economy in Care, wholly unlike what the confiscatory delivery system now in existence costs us!

Wednesday, February 16, 2011

What If We Knew What We Didn’t Before It Happened And Planned Accordingly!

Wouldn't it be wonderful if we knew, planned and survived the storm of the unknown continually happening to us, one day at a time! Wk know it doesn't work that way but wistful thinking should be so whimsical as this!

It will not be according to the rules of the world we live in. Along with the rule that we occupy space and pass through a period of time, another operable rule is we take tomorrow for whatever it produces. We can’t control it hard as we try and try and….

Given: we can’t control it; we all constantly try, exhaust ourselves with the effort, but to naught. What if we spent that effort assessing the risk of the future and planning to cope with whatever that bodes for us? That makes sense doesn’t it? Do we? Too often this passes us by with or giving it nary a thought!

An example is addressed in the article in Alzheimer’s Reading Room entitled Financial Planning a Key But Neglected Component of Alzheimer’s Care Read it by clicking on the title or on Archive where I have posted it.

Outstanding, some one organization is demonstrating having a clue. They are seeing what isn’t out there and recommending in remedy what should be done in the face of that. How great, how helpful, how very very rare!

The article describes what UCSF with the VA has recommended as a standard of health care practice for professionals treating Alzheimer’s Disease (AD). They recognize the problem, they recommend solution. This is planning that is being done for us because we do not nor have we done it, we don’t plan ahead, added to it, AD is something that can never happen to us.

The sorry thing about this magnificent undertaking by UCSF is that it stands so very alone. Who else is doing it.

The arrogantly obtuse medical profession is still saying take this and call me in a year. That is if they are willing to diagnose it because too many of them are like a doctor acquaintance who has the belief that medially we can’t do anything for them but keep them safe They don’t have a clue what their patient should do nor are they required to find out. “Not part of their Job description!” they say.

We don’t anticipate this, the health care profession has no clue, the support organizations are feverishly raising funds to find a cure, with little near term hope in sight. They are doing this, laudatory as that is, and necessary for all of us, but done at the expense of doing much else to help us who have it.

In this field, help for those who have it, little is being done to help which is so sorely needed.

Humans by their natural inclination have not done it. It is not seen as a problem requiring special attention such as retirement that does get it. Only until very recently has anyone taken a public stance about the burgeoning risk of AD, particularly the exponential increase coming as more seniors in number by way of survival and the Baby Boomer Bulge becoming age 65 this year.

We get little at the doctor’s office, nothing after. The associations and support structure know some about home care services, assisted living and nursing home care, social service reference but it ends there, often at the expense of support group references. They are too busy raising money.

There is a complete absence of programs from any group purportedly available to support us for financial planning as we rebound from the diagnosis. None!

The financial consequence to anyone affected by AD is Devastating. It has the likely capacity of bankrupting any middle class couple not qualifying for Medicaid, and not wealthy enough to have savings or other ability to pay the cost of long term professional care which will happen for most of us AD Afflicted.

The problem is not at all difficult to assess. Planning to the extent that can be done to overcome the awful consequence that could happen needs the advice and counsel of an attorney versed in Elder Law. The financial planner needs expertise in Elder Law. My financial planner did not have it when he told me I did not need Long Term Health Care insurance, I had enough to self insure! Was he ever wrong, the product of overwhelming ignorance.

I was a lawyer, my wife and I recognizing the need of specialized advice and counsel we hired an elder law specialist who worked with our own family attorney to explore and establish a plan.

From this experience I undertook to write a paper on Financial Planning for AD. Before completing the paper I needed answer to this question: if Medicare doesn’t pay, if Medicaid won’t pay, can I at least get a tax credit or deduction for the nursing home cost.

I first asked an elder law lawyer one of our local AD advisory board. She did not have the courtesy to call me back. This was after I asked at our Local and National Alz.Assn. They did not know nor could they refer me to anyone that would. I then asked my own Elder Law Lawyer. He said his practice did not extend to tax questions. Like C’mon guy, get a clue!

I then called the CPA who handles my tax, a guy out in the country in a small town in mid-Minnesota in Mid-America. I offered to pay him for an opinion. He gave it to me declining a fee. God Bless Chris Shorba of St Cloud MN. He said it was too basic to charge for.

Yes, in most instances it is not deductible. Medicare will not pay outside of qualified med expense you can not deduct it nor is there credit for it against any income tax liability you have in the year of payment or as any kind of a loss carry over.

After encountering these loggerheads in getting information I gathered it all together and wrote a paper entitled:  Estate Planning for Alzheimer’s Disease covering the waterfront in detail. I also blog posted on the issue many times on my blog My Alzheimer’s After Thoughts the most recent of which is entitled Do you know what it costs to get Alzheimer’s Disease (AD)? Click on it to go to the blog to read it. The paper itself can be found at ESTATE PLANNING FOR ALZHEIMER’S Archive for my Blog. Be warned this is a layman’s view; do not rely on it I am not a lawyer.

Many are the questions left to drift in the wind leaving your diagnosticians office with the Dx of AD. The list is endless once started. One of the more important questions needing answer is what financial planning needs to be done to deal with it. There are many wrong ideas out there. A unified consistent message is needed for planning is badly needed. A service to provide such planning at the start, such as to get you to the appropriate professional to approve and put a plan in place are critical.


Before this the simple service of an AD Financial Advisor should be provided between the doctors office and the start up of adjustment to the abrupt change occurring by reason of diagnosis.

No one is doing this. No one appreciates the need. This is but another instance of not doing what needs to be done and missing the point!

If We Don’t Know What To Do When It Happens, Should We Then Plan What to do After it Happens?