For those who remain, who have not moved back to the core,
mostly older people, there is so little convenience for them in decentralized
shopping areas, lack of organized public transit, everything is distant and
requires a car to get there. Many don’t drive. DEMENTIA ENDURED
formerly: My Alzheimer's Afterthoughts!
I Have This Terminal Disease,
It Moves So Slow It Is Killing Me!
Dementia Endured
One of 25 Best Alzheimer’s Blogs of 2012
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Mike Donohue is a brave man. Courageous, direct, and bold, his blog energizes readers with a passion for action. Dementia Endured gives a hint in the title as to the nature of this talented writer: he will endure. And with a personality like Mike’s, it’s easy to believe that he shall overcome, as well!
His life experiences are opened to the reader, and his journey recovering from alcoholism to adjusting to Alzheimer’s holds its own fascination for visitors to his site. Mike’s strength and determination will remind readers that dementias are one area in which it’s best not to hold any punches.
Wednesday, June 12, 2013
Ch. 23. Suburbs Are Ripe For Change
For those who remain, who have not moved back to the core,
mostly older people, there is so little convenience for them in decentralized
shopping areas, lack of organized public transit, everything is distant and
requires a car to get there. Many don’t drive.
Part 2:
Tuesday, June 11, 2013
Ch, 22. Criteria and Recommendations for Change in the Care of Dementia
22. Criteria and Recommendations for Change in the Care of Dementia
In the preceding chapters I have been concentrating on the need for change in the way we provide care for Dementia. This was generally discussed in two previous chapters the first entitled: Ch. 19. It is Time for a Radical Paradigm Shift Seeking Economy in Care. The second entitled: Ch. 21. The New Moral Frontier: WE DO FOR ONE ANOTHER!
Each post in the list has its specific WebSite address within either the blog or the archive
Posts Relating To Criteria And Recommendations For Change In The Care Of AD or similar dementia.
1. Elder
Cohousing http://ic-mike.blogspot.com/2011/04/elder-cohousing.html
2. Boomers
Redefine Retirement Living http://ic-mike.blogspot.com/2011/04/bulletin-boomers-redefine-retirement.html
3. Broke Town,
U.S.A. http://ic-mike.blogspot.com/2011/03/broke-town-usa.html
4. Researchers
Conclude Nonprofit Hospices Care for Most Costly Patients http://ic-mike.blogspot.com/2011/02/researchers-conclude-nonprofit-hospices.html
5. Strains for
Hispanic Caregivers http://ic-mike.blogspot.com/2011/01/strains-for-hispanic-caregivers.html
6. COMMUNITY OF
CARE http://ic-mike.blogspot.com/2011/01/community-of-care.html
7. New Lives for
‘Dead’ Suburban Malls http://ic-mike.blogspot.com/2011/01/new-lives-for-dead-suburban-malls.html
8. Wanted: A
National Respite System http://ic-mike.blogspot.com/2011/01/wanted-national-respite-system.html
9. Some Retirees
Opting for Campus Life http://ic-mike.blogspot.com/2010/12/some-retirees-opting-for-campus-life.html
10. The Bright
Side of C.C.R.C.’s (Continuing Care Retirement Communities) http://ic-mike.blogspot.com/2010/12/bright-side-of-ccrcs.html
11. Where will
seniors live? http://ic-mike.blogspot.com/2010/12/where-will-seniors-live.html
13. Suburbs are
showing their age pt 2 http://ic-mike.blogspot.com/2010/11/suburbs-are-showing-their-age.html
14. Suburbs are
showing their age pt 1 http://im-mike.blogspot.com/2010/11/bold-but-sensible-proposal-part-1-of-2_17.html
15. Living
Together, Aging Together pt 2 http://im-mike.blogspot.com/2010/11/bold-but-sensible-proposal-part-1-of-2.html
17. Coordinating Help for a
Neighbor in Need
20. A Fast Paced City Tries to Be
a Gentler Place to Grow Old http://ic-mike.blogspot.com/2010/07/fast-paced-city-tries-to-be-gentler.html
21. Can Community Involvement
Prevent Memory Loss? http://ic-mike.blogspot.com/2010/05/can-community-involvement-prevent.html
22. We Can Make a Difference http://ic-mike.blogspot.com/2010/05/we-can-make-difference_20.html
23. Quality of Life IS Possible
After a Diagnosis of Dementia http://ic-mike.blogspot.com/2010/05/quality-of-life-is-possible-after_17.html
24. New Funding Proposed for Adult
Day Centers http://ic-mike.blogspot.com/2010/05/new-funding-proposed-for-adult-day_15.html
25. What a Big House You Have,
Grandma
Ch. 21. The New Moral Frontier: We Do For One Another!
21. The New Moral Frontier:
We Do For One Another!
In Chapter 19. we discussed the proposition: It is Time for a Radical Paradigm Shift Seeking Economy
in Care. This chapter is a continuation
of my thoughts and premises about the direction the shift has to take.
We have experienced a slow but certain drift in our
culture and economy to a polarization between those having the assets and those
who have not. At one time there was more of a balance in our society. That led
from the Great Depression, WWII, and the recovery that followed that war. There
was a great deal of equalization in the ownership of assets; there were fewer “have
nots.” Owning your home with a car in your garage coupled with disposable
income with which to use the car and otherwise seek the good life became an
achievable goal. There was more of this then a chicken in every pot which was
the endeavor of Hoover before the great depression
Then it shifted again just like a pendulum. We went back
to what was. We are there now. It is slowly becoming painfully obvious.
Those of us affected by AD and similar dementia face our
future with significant difficulty because of this drift. Seen from our eyes we
must deal with the following challenges:
· The
cost of care exceeds reason making it impossible for way too many of us when
professional care becomes an absolute need and personal assets are not
sufficient to absorb the cost. Too many of us are faced with paying this
confiscatory cost until our estates are paid down to the poverty level. When we
reach that poverty level we then will qualify for aid from the government.
· This
factor, complicated by runaway cost, is a new equalizer. It doesn’t equalize
between the “have” and the “have nots;” it equalizes the middle class and the
poverty class, reducing all of them to poverty class.
· This equalization doesn’t touch the rich. Their assets
are secure; their assets are able to absorb the cost and are made even more by
the tax advantages accorded the rich.
· If the cacophony
issuing from Washington is to be believed
all levels of Government are nearing insolvency.
· We
hear “pay down the deficit”, “starve the beast”, “cut-back” from the same
politicians who gave us deregulation of the financial markets, who brought us
War in Iraq, sans, conscription and tax increase to pay the fare. In 2000 one
president stepped out of office leaving a surplus only to have that surplus
turned into an alarming deficit in eight years. This deficit was then capped in
2008, the eighth year of the deficit, with the bust of the bubble of the false
economy that came to be in the absence of deregulation.
· This left the new administration in Washington faced with
two wars to wind down and out of, the economy in the emergency room needing
critical care and re-regulation of the de-regulation.
· It
is this same absurdity coupled with a tax cut for the uber rich, the decrease
in local tax payment resulting from the economy stripped of its worth that has in
turn de-funded all of the grant-in-aid and similar programs of federal support
for the operation of local government. This leaves local government unable to
do what the Federal Government won’t do and the local governments can’t as they
are inching up to insolvency.
· Medicaid
is the federally funded program given the states to provide Health Care to that
group it defines as below the poverty level of our society. This level is
ownership of no more assets between a husband and wife than approximately $107,000,
a homestead, one car and a few other not particularly significant assets.
· Medicaid
is subject to the local control of the states administering it. The current cut
back cry is producing an almost unanimous trend of reduction of benefits in many
states, some states severely doing so.
· Between
the cut back trend, the near insolvency of state and local government, and all
the opposition to anything characterized as welfare, it is doubtful Medicaid
will survive.
· The
space between the rock and a hard place is swiftly narrowing as it relates to
help for the necessary care of Dementia. The entrepreneurial fever that has
captured institutional care is pushing cost higher and higher to secure profit
and capital gains.
· 65%
of Nursing Homes are owned by private for profit owners.
They tend towards the Big Box style of operation the
funding of which frontloads the development cost in a profligate sort of way.
We Need To
Re-Invent This Wheel:
The re-invention needs to come from the bottom up. It
needs this because there is no other source able to provide this. By bottom up
I mean local, us, me and you, viz, the rest of us. It comes to us to help one
another.
Competing no longer works. After 500 years the
“Survival of the Fittest” has changed to the “Survival of the Special.”
Ch. 20. The Brain's Amazing Potential for Recovery
20. The Brain's Amazing Potential for Recovery
On May 5, 2011, CNN carried an
excellent analysis of the power of plasticity of the brain. It is worth the
read. Entitled The
brain's amazing potential for recovery It can be found in my Archive
by googling the title to goto my Archive to read it.
It discusses US Congressman
Gabriel Gifford’s amazing recovery from brain trauma caused by a gunshot wound
to the brain; it discusses the plasticity of the brain making that recovery.
As a person with dementia I read
it with particular interest. I was diagnosed 7 years ago with dementia while I
was in the very Early Stage of the disease. I have benefited from my Early
Diagnosis by asserting my brain’s plasticity. I firmly believe I have stemmed
the slide of the intellectual deterioration that is part of the disease.
My interest in the article has to
do with this: The article reports on the progress of Gabriel Gifford’s amazing
recovery from a bullet shot into her brain. The article attributed much of the
recovery to the innate plasticity of the brain. About it Dr. Sanjay Gupta,
neurosurgeon and CNN chief medical correspondent said:
Her case shows off the
brain's capability to restore some functions after substantial injury, a
phenomenon called "plasticity" that is helped by rehabilitation.
It's still a relatively new
concept… The brain was once thought to be completely immutable or not capable
of change, after childhood.
If it is possible with traumatic
brain injury as we already know it to be possible with stroke it seems it must
also be possible with damage the result of vascular insufficiency and AD.
I have seen recovery of lost
function in myself and in many others. Following the “Best Practices” is one of
the ways it can be done. I am convinced that many of us have prolonged our stay
in the Early Stage of AD by working the “Best Practices” hard!
This aphorism if followed is
effective. The reason is in part the amazing plasticity of the brain. It works
with AD and similar dementia as it does with stroke and with brain injury!
The collateral benefit of working
your brain’s plasticity is the quality of life it produces. On diagnosis of AD
we are stereotyped as that person standing in the corner drooling, captured by
the two sides of the corner, unable to find our way out.
Particularly in the Early Stage
we remain quite functional, come off normal, and suffer the indignity of the
response “You can’t have it, you are just too normal!”
We have all heard this too often.
It was Richard Taylor in his book Alzheimer’s
From the Inside Out who said “If I got a dollar for every time I was
told ‘you can’t have it…’ I would be a multi-millionaire.”
AD and similar dementia professionals
have been slow in coming to the plate on prolonging the Early Stage. It is so
important to the quality of life of all of us affected by AD and similar
dementia, namely we who are impaired and our loved ones, particularly our
Caretakers. It is equally important to us and everyone else because of the
savings it causes in the Cost of Care. The longer we are functional the longer
we can avoid the cost of institutionalization.
If Plasticity works with
Traumatic Brain Injury and with Stroke Therapy, it works with AD and similar
dementia too. The only difference is the need to keep our efforts ahead of our
deterioration when working out of Dementia‘s portal.
If it is possible with traumatic brain injury as we already know it to be possible with stroke it seems it must also be possible with damage the result of vascular insufficiency and AD.










